Late last year, I was diagnosed with a brain tumour. I'm physically fine, but am coping with increasing symptoms. Nothing awful, no pain thank goodness. But it's knocking me for six. There's little I want to do and luckily, because I work for Mr Dunnit and he's a sweetie, little I have to force myself to do. I walk like a drunk, half of my face is frozen, I'm deaf in my right ear, my right eye is sore and my vision is double until I've been awake for a few hours. Oh yeah, and I'm super tired all the time. It's very, very boring. But it does account for the lack of posting. I know, any excuse! Below are a few details that you may or may not want to know. Read on if you do, finish reading here if you don't!
It's not malignant. Doctors tell me it's therefore benign. But I'm avoiding use of that word; a brain tumour that makes you permanently deaf on one side and has a slew of side effects for life isn't really benign by definition is it! I'm on the wait list for surgery, it will probably be May. More than happy to wait my turn, there are people discovering malignant tumours and other brain disorders who need not to wait. In summary people, I'm not about to die. I am however, not rolling in clover just now. So I'm not going to be posting nearly as often, because I'm not doing much that's worthy of blogging! Having said that, I will continue to blog; but I already know it won't be very often. The gracious Jan (LLJ) has agreed to take over WOYWW so that we don't experience any interruption in the week numbers. I'm not sure when this will be, but I'll flag it up so that you know to visit her blog as the host.
Well, that was horribly serious wasn't it! I just wanted to explain my absence really - and remind you - Carpe Diem, gentle reader!
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87 comments:
Given the serious symptoms you are suffering I am so sorry that it could be another couple of months until you get some treatment... benign or not, (and thank god it is) it seems very debilitating. I have been thinking about you lots since you told us this news at the last crop, and can only hope that the surgery comes soon and is successful and you can get back to normal (ahem) . Until then, take care, do what you want to do, blog wise; we love you and want you to know that. Nothing is important in the scheme of things, but a big thanks to LLJ for agreeing to take on the mantle of WOYWW when you feel you can't; for however long it takes. Sending you hugs and love. xxx
You have a large group of friends that will understand fully and I for one am here if ever you need me. Your news is awful but you will beat it....I just hope the surgery comes sooner rather than later and they don't make you suffer the awful waiting game for too long. I'm sending you the biggest hugs.
Annie x
Well that stinks... I really hope they find a spot on the list for you as promptly as possible so you don't have any additional factors to contend with dear Julia, and I think the group of people that you have gathered around you over the years are going to wait for each and every post whether you have made something or not! Big hugs, and if there is anything I can do from a distance, please yell.
Bugger! Hope they don't keep you waiting too long luv x
It's hard to know what to say without it seeming trite Julia. You are being incredibly brave, patient and pragmatic and frankly I'm in awe that despite everything you have continued to post at all. I hope and pray for you that the surgery comes soon and is completely successful. Sending you the hugest of gentle hugs and all my best wishes. Jenny xxx
I second everything already said and send you the bestest of wishes and gentle hugs xxx
Oh damn! Awful news! I'm devastated for you. A tumour, however 'benign', and judging by your symptoms I wouldn't describe it thus either, sounds like a pretty good reason for not blogging. Alan & I are thinking of you, hoping you're not on that waiting list too long and that the surgery will be so successful you can, as Helen says, get back to normal as soon as possible. In the meantime, I'm sure LLJ will make an admirable job of looking after WOYWW for you. Hugs, lots of them, and do take care. Elizabeth xx
What to say? Amazed you are up to posting at all! I can tell by your words you are being positive and that is important...wishing you a swift resolution....sending cyber hugs. xoxo Sioux
I really really wish you all the best.
Good treatment and a fast recovery.
So many people are thinking of you and
praying for you or just keeping their fingers
crossed for you. That might help a little...
Warm hug
Sussie
I so sorry to hear this Julia and you certainly do seem to be suffering and having a miserable time. I also hope that you can have your operation sooner rather than later. Sending love and Big Hugs, Barbxx
I am so sorry to hear your news. Sending my best wishes for a speedy recovery.
sending you love and hugs. Not much else to say other than the WOYWW mob are here for ya.... Xxxx
really sorry to hear.... thank goodness it's benign but the sooner you have surgery the better....Hope you are able to have a speedy recovery soon....
really sorry to hear.... thank goodness it's benign but the sooner you have surgery the better....Hope you are able to have a speedy recovery soon....
Good Grief Julia! So sad to know that you are suffering in this way! Hoping that the surgery is sooner rather than later! Pleased to know that Jan is nearby to give you the hugs I'm sure everyone would like to give you!
Wishing you some times when you do feel creative but in the great scheme of things, blogging is not so important! Take care love! Hugs, Chrisx
When we visit others' blogs we truly know little about their lives and worries. So sorry Julia you have to go through this - but so glad you shared. You will now be surrounded with so many prayers on your behalf - mine included. May your surgery happen as soon as possible.
Oh Julia.What news you've had. Your whole family must be in shock, and what devastating symptoms. I wish you strength in the coming months while you wait for your surgery.I am terribly,terribly sorry.
So sorry you are going through this.
Hugs and a speedy recovery for when you do go for surgery
I'm so glad you've shared, Julia, because it can't hurt to have your legion of friends praying and sending positive thoughts your way for no further debilitating symptoms and for a speedy and successful surgery. Bless Jan for agreeing to help with WOYWW so you needn't fret that you're letting people down. I'm so looking forward to meeting you both in July (and perhaps other WOYWWers, too), so kick that tumor's ass and we'll celebrate then!! Huge hugs, Darnell
I have no words but wish to share a virtual hug. You are beautiful.
Jeepers! For what it's worth, I'm sending positive thoughts your way.
WOW! I hate to hear that! I hope things get better and they can bump you to the top of the list because I personally know how a "non malignant" tumor can make your life a living hell. Sending good thoughts your way! {{{Hugs}}}
There's not much I can say that I haven't told you privately. May you continue to be blessed with that positive attitude you always instill in others and yourself. May can NOT get here soon enough.
I'll add virtual hugs, too. And a big hug to LLJ, too, who will do so much, and has done so much already.
I'm so sorry to read this but glad that it is not as bad as it could be. Sending you positive thoughts and a big hug.
Lynn x
So sorry to read this Julia. I am glad that the news was not as bad as it could be but it sucks that it is still affecting you every day. I hope that the wait for surgery goes quickly without too many extra side effects to add to your plate. Fingers crossed for a hospital cancellation and that you get bumped up the list so that your wait is shorter. take care of yourself.
Charlie xx
Oh Julia, that's awful news, so sorry you have to experience this. I do hope the surgery will fix it all so you will get back your hearing, vision and energy. Take care, hang in there, sending you a big hug!
aww dear lady I had no idea as I am one of your newbie followers. I hope the surgery helps big time with all those nasty symptoms. ((((((((((((((((hug)))))))))))) will continue to look for your posts. Sending my love xx
You are such a positive person and that is inspiring in itself. Life sucks when something like this happens but you carry on as well as you can and hubby is so supportive towards you. I haven't been doing much lately either because Hubby also got diagnosed with cancer and is going in on Tuesday for an op to find out if he had a different cancer and yesterday I got diagnosed with diabetes which was very upsetting and makes for some lif changing decisions. Maybe we can have a pity positive post some day to cheer us all up. Keep us posted about your health even if there is no crafting going on in your life, we want to know how you are going. Keep as well as you can xoxoxox from Australia . Bridget
((((hugs))))
Toni xx
Biggest ((((((((((((((((hugs))))))))))))))))) hun, you take care and rest up and do what suits you at the moment, you and your family are far more important. Will be thinking of you and keeping fingers and toes crossed that the symptoms don't worsen and the op sorts everything out.
Julia, it was such a shock to hear your news and what you've been going through, like everyone else I hope your surgery goes well and you have a speedy recovery so you can get back to us all.
Sending lots of hugs Jan xx
OMG!!! You have been dealing with a lot. I will be sending you positive healing thoughts and huge massive hugs (((Julia))).
Perfectly understandable that you aren't doing so much and fab that Jan is going to host the WOYWW.
You take care. Sue
Sending you the biggest hug and all the positive vibes I can muster. The WOYWWers are all with you and Jan is a gem isn't she. xx Jo
Hello Julia and I am at a loss at what to say - my thoughts and prayers are with you and your family. Hope surgery is sooner and I wish you a speedy recovery!!! Anne x
Hello Julia and I am at a loss at what to say - my thoughts and prayers are with you and your family. Hope surgery is sooner and I wish you a speedy recovery!!! Anne x
Take care, thinking of you.
Kate
I don't take part in the WOYWW but I do follow your blog and often if health issues allow I will click on the links to discover what is being posted. I will keep you in my thoughts and hope for a good and speedy recovery and wish you didn't have to wait so long. If anything don't over do when you come home even if you think or have the desire to do don't push yourself. Most of all I hope that your symptoms are relieved once your surgery is over. You've had a great deal to handle these last few months.
I was diagnosed with a brain/spine disorder which has no cure, massive amount of symptoms and which surgery can't cure but theirs a 50% chance it could reduce them. I keep saying no for various reasons but I can relate to how and what your are going through right now. Just the thought of it makes me want to vomit. I actually had a neurosurgeon tell me "well it's not like it's brain surgery." Really!
Oh goodness Julia, what a thing for you and your family to cope with. I'm so sorry that it's impacting on your life so much, having a chronic condition myself I know how frustrating it is when you can't do things. I hope the tumour is very slow growing and that your surgery is a complete success. Sending you lots of love and coping vibes. Cara x
So sorry to read this Julia, but on a positive note I have two neighbours who have had similar conditions and post surgery are really doing well!
Let's hope you don't have to wait too long for yours!
Sending warmest wishes xx
Hi Julia, I only asked LLJ yesterday how you were doing, when I let her know my results. I am guessing you've had the hug I sent you by now, :). It's definitely the waiting that shreds your nerves, it seems on one hand to be forever, on the other the time seems to fly, it's really strange. I'm hoping they get you in quicker, a cancellation is just what you need now- over and done with. I can't even begin to imagine what you are dealing with- at least mine made no real difference to my day to day life, yours must be driving you round the bend. Anyhow, take the advice you were always giving me, and get as much rest as you can, and do what your body wants you to do, and no more. :) Huge hugs and lots of love from us both, xxxxxx
PS. Doug sends love and manly hugs to Hubby- he said he knows exactly how he's feeling.xxx
so sad to hear what you are going through, words fail here.
totally understandable that you are stepping back from blogging, your primarily focus is and should be your health. I wish you and your family all the best. WOYWW will not be the same without you, but we'll keep it going for when you return.
Sorry to hear about your news, I have never posted before anywhere but wanted you to know how much I look forward to your posts and am looking forward to their resumption when you are better.
I have typed this comment about 4 times now and deleted it Julia. I am rubbish at this sort of thing, it all sounds cheesy when I get it out of my head. Just know that I have a rage on here, it's not fair what happens to wonderful people. I hope you get your surgery sooner rather than later. I've been missing Blogland so much so have been remiss in noticing anyone not posting but I count you as a good friend whether you or I blog or not.
Sending big hugs from all of us here,
Carmen x x x
Oh crumbs Julia - what a shock. You hid that very well - and now let's hope you can have the surgery sooner rather than later so it isn't hanging over you, or getting even worse.
Sending love and hugs
Di xx
Julia, sending big hugs your way!
Sharon K
Makes me so mad that you have to wait for surgery with debilitating symptoms.I hope you get surgery very soon, recover rapidly, and the symptoms disappear with recovery. have not blogged in a while but i do get you on bloglovin so I will be checking on you. Lots of hugs and positive thoughts coming your way. You go girl. relax and take it easy. tell hubby to accept all the help family and friends offer. ONWARD....
ah Julia, I am praying that everything goes well and I am glad on one hand that they think it is something that is not so serious that they needed to remove it yesterday, but sad that there are so many people that the waiting is so long.
I hope that everything does go well and the side effects are reversed after. as a deaf person that is a really hard thing to have no sense of direction hearing from one side only. ( I have bilateral cochlear implants and there was a year gap between surgeries) so, I have had that hearing on one side for a while thing.
((( HUGS )))
~Stacy
Dear lady, what a thing! Will keep you and yours in prayer as you continue with this journey. The month of May is not far away, please keep us posted as you see fit, you know we want to hear your updates!
(Now stop making excuses, go make something, and post it.)
;)
So sorry to read this news Julia but hopefully you will get your surgery soon and be on the road to recovery.
Will keep sending positive thoughts your way.
Well, here I am, sitting in a hotel room with a cough and a blocked nose feeling sorry for myself and I pick up my iPad and read this. Julia, how you have borne this since October without screaming it from the rooftops I just do not know. You poor poor thing, but you brave brave soldier for carrying on without giving us all an inkling that there was anything wrong. Those symptoms you are experiencing sound absolutely awful and I hope and pray you do not have to experience them another two months.
I did hear about this but was sworn to secrecy but then when things appeared to carry on as normal I began to assume it was a mis-diagnosis or something. It was only this week when I noticed there was no post between Wednesday's that I once more began to wonder.
Julia, you have done the right thing in letting us know about this because now the power of prayer can begin to work. I really believe in this and you are now added to so many prayer lists you have so much more to help you through this.
Sending my love to you and your family and, seriously, if there is anything I can do you have only to ask.
Love, Blessings and Gentle Hugs
Neet xxx
Julia that totally bites waiting to get fixed up glad to hea they can work on the bu totally crappy you have to wait sending big hugs from across the pond.
Hugs Nikki
Hun, you know we are all here for you and I have no doubt the lovely Jan will look great in her temporary tiara for Wednesday's. If you fancy cake and a winge/slightly odd ball distractions then don't forget I can be there in just over an hour....it's a nice drive and some lovely charity shops in Marlborough!!!
Kyla x
Oh Julia, I am sorry so sad to read this news, must have been a hard post to write or perhaps a relief to tbe out with it seeing it is affecting you, in many areas so very much ..
As I am an intermittent blogger, regularity us not my strong point. I do often read your posts in between but don't always comment, however I just put it down to circumstances when folk don't post.
I get being unwell but think something like a tumour in a critical area is such an unknown quantity. Lie others I will eb roaming it will be surgically and safely removed sooner rather than later. Not fun.
Three cheers for faithful friends like dear Lunch Lady Jan.
Have often thought doing WOYWW week in week out must be a challenge.
Hugs dear friend, from across the waves, and many, many prayers too for a swift and successful treatment!!
Shaz in Oz.x
Yes, I had noticed you had been blogging less frequently, and I am very saddened to hear the reason. You are such a positive person. Even just meeting in cyberspace, this is obvious, and I feel like I am fiends with so many woywwers, and it's all due to you. So, sending lots of virtual hugs and best wishes for a speedy recovery. (Are you on a cancellation waiting list? No need to reply, I will assume you are.)
Take care, rest, create and blog, or not. Look after yourself.
RosA (Roslyn) xx
Sending you lots of love and hugs... take all the time you need to rest and do what ever you need.
sandra de
Sorry to hear about your news :( Thank you for always thinking of the WOYWW group. We are are family and family sticks together. I will be thinking of you in my prayers.
Oh Julia. I'm so sorry to be reading this post - you must be really struggling at the moment. Our love goes out to you, your hubby, and your family. The wait for your surgery will seem endless, and amazingly short both at the same time! John and I send our love to you. Know that we will be praying for you. Father God loves you very much - you are most precious to Him. He will hold you as you go through this time.
Get the rest you need, allow yourself that. Trusting your hubby will also be able to get rest as you wait for your surgery.
Don't fret about WOYWW - you have worked hard over the past almost 7 years, and seen a community of friends grow together - we won't let go of each other - OR YOU - at this time.
Take care my friend.
God bless you.
Margaret
Well Julia, what can I say that hasn't already been said? Thanks you for sharing and being so honest, my prayers are with you and your family all the way, and from experience, I can say how wonderfully supportive the WOYWW gang were when Adrian was having his surgery and I know there will be prayers and support for you from all round the world. Bless you and OH, (((((((((((((((HUGS))))))))))))))).
Chris
Oh, sweet Julia! What a difficult piece you've been given. But knowing you (and sounds as if you are), you will muster through and come out a shiny new penny when all is said and done. Post when you feel up to it. I know Jan will keep us updated when you can't. She's a pretty cool friend like that. ;-) Sending you Healing Blessings! And all things good. ~Kelly
So sorry to hear your news, I hope you get your operation sooner that you expect and some of the side effects improve, sounds rubbish! Take it easy xx
I was shocked and saddened when I read your post Julia. Even though I don't comment much, I visit all the time and love to read your posts.
Sending big hugs and huge wishes for a speedy surgery and a full recovery. Hang in there Lady, we all lurve you lots!
Tight (but gentle) hugs,
Michelle
Why is it that the rotten things happen to the nicest people? So sorry to hear your news, Julia. Stay strong and I hope you get all sorted as soon as possible. We are all here for you. Sending big hugs
Love Lisa xx
Julia you are a star. What you are going through is horrible and I wouldn't wish on anyone. We have a little boy who is a neighbour who is going through so much chemotherapy/radiotherapy for a brain tumour that it breaks your heart. He will never be the shiny happy child he was.
Please be kind to yourself, no matter what. Mr Dunnit is I feel like my Mr Dapper chap, one of the best and I'm sure is quietly going about being your means of strength. As you know we work for ourselves too and you can't keep a good husband and wife team down for long.
You are in our prayers for a return to good health soon.
Love LYnn xxx
I've been dealing with so much these last few days that I hadn't seen this until I came to do WOYWW tonight.
I'm very sad to read this, even sadder that you're having to wait so long for your op. Like everyone else, I hope your op comes soon and relieves you of the horrible symptoms. Life seems really shit sometimes and it always seems to be the nicest of people that get the worst crap.
Will be thinking of you and wishing you a speedy 'back to normal'
And great that LLJ is going to keep up going each week until you're up to coming back to us
Stay as positive as you can!
xxxxx
I was horrified to hear about your brain tumour! What a bummer! It´s not fair. Thank you though for sharing it. You seem quite pragmatic about it. The symptoms are horrendous and my heart goes out to you (and Mr Dunnit). I so hope the op can be brought forward somehow. The sooner you get rid of that tumour the better.
In the meantime I send you virtual mega hugs. We will be praying for you.
Stay strong,
Lisca xxx
I have only come across your message and I just want to send my love and positive thoughts to you for a speedy recovery. It really brings home the state of the NHS and you are so gracious in seeing that others are in greater need. You too are in need and I hope your surgery comes soon so that this can all be behind you and you can move forward in good health.
Keep up that spirit and you will be through this as soon as they pull their ****** fingers out!!!
With all my love, Jo x
Oh, my goodness, I am so sorry that you are going through this. I just said a prayer for you and will keep you in my prayers going forward. Sending you all the love in the world and God Bless your sweet Mr., too and your daughter, both of whom, I'm sure, are worried about you. Do let us know if there is anything we can do from afar -- just post and say, having a bad day, need cat pictures or something and we will jump into the fray. Big hugs.
I am sorry that you are experiencing such nasty side effects from your brain tumor. I am very happy that it is not malignant and that a date for surgery is in sight. I will keep you in my prayers. :-) And look forward to your getting back to your normal self later in the year.
April
I'm so sad for you :^( but happy it's not malignant. Still. I guess we all have to deal with something. Mine is a one in a million Pemphigus Vulgaris which sounds awful, but what I have is relatively mild. Still. I will add you to my list of people to pray for. God bless you!
Oh my, Julia! What shocking news! Sending you hugs and prayers. I am so, so glad that it is not malignant.
I'm am very sorry to hear that. And I'm very sad that you're having to wait so long for your op. I hope you have a quick recovery an I send you the bestest of wishes!
Greeting, Sofie
http://sofie-s-world.blogspot.be
Oh Julia, I've only just read this... I am so, so sorry. I do hope they can deal with this completely and thoroughly, and with minimal suffering on your part. I am sorry you are suffering such unpleasant symptoms despite it being "benign." I know how it feels, preparing for major surgery, and you are very much in my thoughts and prayers at this time. Wishing you and your hubby all the best. For the spouse it's always a horrible time and they feel so helpless, but he can be reassured that even if he thinks he isn't able to do anything, just being there is doing more than he knows. It is a great comfort having one's other half there throughout. I don't know what I'd have done without mine.
Don't worry about all of us. Taking care of you is the most important thing from now on!
Shoshi x
Saying prayers and sending hugs.
Somehow I have missed this post. I am in shock, dumb founded. numb. speechless. WOW. Julia I am so amazed you have not posted this sooner. I am so sorry you are going through a worrisome time. I've not read all the above posts from friends, it's early am and I have eye issues without my glasses (broken). Seems a minenute problem compared to what you are going thru. I can only say, I will pray for you, encourage you to be positive, get plenty of rest and hope you have the best of doctors and don't hesitate to ask for help, people will always be there for you. I've a blogging friend "Sherry Cheever" who went thru this several years ago. She had amazing results and is doing wonderful from her recovery. I wish you the very best now and during your recovery time. Glad to hear LLJ will keep us going. A big hug stay strong and lots of prayers for you.
WOW! I am humbled by your positive spirit. It must be hard coping with a Brain Tumor - whatever its condition it must have been very hard for you and your family. My thoughts are with you. Any help, anything that I can do, please don't hesitate to ask. Even if you just want me to send you a box of Twinkies from NYC :) Cx
We don't know each other, have never met and most likely won't ever meet being on different sides of the pond as it is. Just know that there is someone over here in the States, sending the brightest of blessings to you! Know that she understands how you can be so matter of fact about the situation and also understands that this life is a gift that we get for a limited amount of play time with, so cherish every second! Blessings to you my friend!
Angie
Julia, I just read your post and I am sad to hear you are suffering... thinking of you and yours and hoping that the surgery will be sooner so you can start your recovery... sending a big hug to you xx
Julia, I am so glad you shared this, though I'm sure it was not easy and you'd rather just carry on. I suffer from 5 different forms of arthritis (my Arthurs), so I know this: you gotta do what you gotta do for YOU. Stamping Ground must be like my accounting biz was, your baby. Well, as someone who has watched from afar for a long time and recently joined, I know it's not going anywhere, it will be kept in good hands until you can come back, we're not going anywhere. My prayers are with you and getting that benign little nightmare out of your head and you healthy and strong again. All you have to do is hang in there and know that by telling us about it, you just got an army of support. If we all send out the prayers, vibes, wishes, for your healing and strength, we will help you accomplish this. I hope these next weeks go by so fast they're a blur. Please keep us in the loop, and thanks for opening up about it. xoxo
I've been absent myself lately. Oh Julia- great love and light to you.
Be the best person with a tumor of any kind you an be and be well and peaceful while doing it.
We will carry on while you need to attend to yourself.
Love, love and more love,
Robyn
Well look what happens when I miss a Wednesday Workdesk!! Now you've got my attention Julia. I was just checking to see what number we were on for this week, and now I'm busy praying for this nasty little brain nugget and so God has my attention too. You are so wonderful and so important to all of us deskers, and we are here for you!! I'm so glad Jan is able to just take a little pressure off with the regular weekly party--and now whether some of us are there physically, or there in spirit across the ocean from you, our hearts will be holding your hand for the next two months or however long it takes to have this surgery. It's the most important thing. I'm praying for relief from these symptoms and healing, and for these two months to fly by! Huge hugs. Sandy Leigh
Oh Julia, I've been away for a couple of weeks so I missed this post. I'm so sorry you're having to go through this, I know that some of the effects of these kinds of tumours don't feel very "benign". I hope you get your surgery sooner than rather than later and your recovery will be as speedy as possible. You will have a loyal band of Deskers rooting for you from all over the world. Of course Jan will do a fabulous job of minding the baby while you're recovering, but it won't be the same until you're back! Love and cyber hugs from Annie C XXX
Just caught up with your blog post and sorry to hear about your brain tumor and how you are feeling at this moment. My thoughts are with you and I hope it won't be long before you can have your operation. Take care of yourself first and foremost. Linda x
So sorry to hear of your condition Julia. I have been away from WOYWW for some time and didn't realise but having read some other comments I found this post from you. Gentle hugs and prayers, BJ xxx
First your card--this wee guy is a hoot. Now for the serious stuff--I've been wondering what everyone was on about talking of your health. I knew I'd missed something and now that I see it, what a doozie! You have a great attitude and I hope you get your head fixed up in no time flat so your symptoms won't continue. Meanwhile, do or say something totally outrageous, and then blame it on the brain tumor.
So very sorry to read that you are suffering with this . Look after yourself as best you can and I hope you are not long waiting for an operation you are in my thoughts and prayers and I'm hoping all goes well for you
Oh my! I have been thinking of you lately and how much I miss WOYWW. I just popped in to see what kind of trouble you have been up to and read this post. Wanted to let you know there will be many many many prayers coming from the other side of the ocean...all especially for you dear Julia! Stay calm and let that Mr. take good care of you. Hugs to you dear friend.
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